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Consent Processes for Mobile App Mediated Research: Systematic Review

8].In order to fully capitalize on the promise of mobile technology to enable scalable research, approaches to informed consent must be adapted in parallel [9].

Sarah Moore, Anne-Marie Tassé, Adrian Thorogood, Ingrid Winship, Ma'n Zawati, Megan Doerr

JMIR Mhealth Uhealth 2017;5(8):e126

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Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study

effectiveness of informed consent has come from studies of research participant informedness in the context of clinical trials.

Megan Doerr, Amy Maguire Truong, Brian M Bot, John Wilbanks, Christine Suver, Lara M Mangravite

JMIR Mhealth Uhealth 2017;5(2):e14

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“I Always Vet Things”: Navigating Privacy and the Presentation of Self on Health Discussion Boards Among Individuals with Long-Term Conditions

For example, Elwell [6], in studying forums used by adolescents with cancer, justified the lack of informed consent from forum participants on this basis, saying:Ethical issues associated with the present project include the issue of informed consent, as the

Ellen Brady, Julia Segar, Caroline Sanders

J Med Internet Res 2016;18(10):e274

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Acceptance of Mobile Health in Communities Underrepresented in Biomedical Research: Barriers and Ethical Considerations for Scientists

In addition to the issues of access and equity, research studies that collect PHD using wearable sensing technologies are raising new and nuanced ethical challenges that also require attention [5].Researchers who are using mobile health (mHealth) methods and

Camille Nebeker, Kate Murray, Christina Holub, Jessica Haughton, Elva M Arredondo

JMIR Mhealth Uhealth 2017;5(6):e87

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Mobile Phones in Research and Treatment: Ethical Guidelines and Future Directions

In 2011, there were over 6 billion cell and mobile phone subscriptions reaching 87% of the world’s population [2]; 1 in 3 subscriptions were for a mobile phone [3].

Adrian Carter, Jacki Liddle, Wayne Hall, Helen Chenery

JMIR Mhealth Uhealth 2015;3(4):e95

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Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

The first section covers issues related to informed consent for the use of EHRs in research.

Melissa Raspa, Rebecca Moultrie, Laura Wagner, Anne Edwards, Sara Andrews, Mary Katherine Frisch, Lauren Turner-Brown, Anne Wheeler

J Med Internet Res 2020;22(5):e16734

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Identification of Informed Consent in Patient Videos on Social Media: Prospective Study

Hence, a patient’s informed consent is required to collect, share, and distribute their image. Patients must be informed of the intended use of the clinical image and the intended audience as part of the informed consent [2].

Jane O'Sullivan, Cathleen McCarrick, Paul Tierney, Donal B O'Connor, Jack Collins, Robert Franklin

JMIR Med Educ 2020;6(2):e14081

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Using Digital Technologies in Clinical HIV Research: Real-World Applications and Considerations for Future Work

experience in novel applications of digital technologies in HIV clinical research and convened these groups for a 1-day meeting.

Jessica Andriesen, Sheana Bull, Janan Dietrich, Jessica E Haberer, Barbara Van Der Pol, Yegor Voronin, Kristin M Wall, Christopher Whalen, Frances Priddy

J Med Internet Res 2017;19(7):e274

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Reimagining Human Research Protections for 21st Century Science

Today, expanding computational capabilities, social media, and broad research networks allow us to conduct an intervention study on Facebook with millions of participants [6], engage patients using mobile phone technology [7], study the whole genomes of thousands

Cinnamon Bloss, Camille Nebeker, Matthew Bietz, Deborah Bae, Barbara Bigby, Mary Devereaux, James Fowler, Ann Waldo, Nadir Weibel, Kevin Patrick, Scott Klemmer, Lori Melichar

J Med Internet Res 2016;18(12):e329

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Understanding Public Attitudes Toward Researchers Using Social Media for Detecting and Monitoring Adverse Events Data: Multi Methods Study

Potentially difficult considerations surround the purpose and value of the research, benefits and harms to participants as well as privacy, informed consent, and confidentiality [8].

Su Golder, Arabella Scantlebury, Helen Christmas

J Med Internet Res 2019;21(8):e7081

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