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Complementary App-Based Yoga Home Exercise Therapy for Patients With Axial Spondyloarthritis: Usability Study

Complementary App-Based Yoga Home Exercise Therapy for Patients With Axial Spondyloarthritis: Usability Study

Axial spondyloarthritis (AS) is an inflammatory rheumatic disease causing spine inflammation and chronic back pain [1,2]. This leads to stiffness and limited mobility due to deformity and ossification [3]. AS usually begins before age 45, impacting quality of life, daily activities, social participation, and employment [4-6]. Treatment combines pharmacological and nonpharmacological approaches [7,8] with physical therapy recommended by AS guidelines [9].

Lara Grube, Pascal Petit, Nicolas Vuillerme, Marlies Nitschke, Obioma Bertrand Nwosu, Johannes Knitza, Martin Krusche, Ann-Kristin Seifer, Bjoern M Eskofier, Georg Schett, Harriet Morf

JMIR Form Res 2024;8:e57185

Predicting Long COVID in the National COVID Cohort Collaborative Using Super Learner: Cohort Study

Predicting Long COVID in the National COVID Cohort Collaborative Using Super Learner: Cohort Study

As the mortality rate associated with acute COVID-19 incidence wanes, investigators have shifted focus to determining its longer-term, chronic impacts [1]. Postacute sequelae of COVID-19 (PASC), also known as long COVID, is a loosely categorized consequence of acute infection that is related to dysfunction across multiple biological systems [2]. Much remains unknown about PASC, leaving individuals uncertain regarding their risk for PASC and what factors may contribute to this risk.

Zachary Butzin-Dozier, Yunwen Ji, Haodong Li, Jeremy Coyle, Junming Shi, Rachael V Phillips, Andrew N Mertens, Romain Pirracchio, Mark J van der Laan, Rena C Patel, John M Colford, Alan E Hubbard, The National COVID Cohort Collaborative (N3C) Consortium

JMIR Public Health Surveill 2024;10:e53322

Preferences, Needs, and Values of Patients With Chronic Obstructive Pulmonary Disease Attending a Telehealth Service: Qualitative Interview Study

Preferences, Needs, and Values of Patients With Chronic Obstructive Pulmonary Disease Attending a Telehealth Service: Qualitative Interview Study

Here, they take on different meanings, tasked with reclaiming self-discipline and control on one hand, while also being concerned that daily measurements can serve as a reminder of one’s limitations, akin to “being reminded of having a chronic disease.” Thus, through the interviews, it becomes apparent how the informants encounter difficulties and impediments in carrying out daily tasks due to their condition.

Camilla Wong Schmidt, Karen Borgnakke, Anne Frølich, Lars Kayser

JMIR Hum Factors 2024;11:e53131

Participation in eHealth Communication Interventions Among Patients Undergoing Hemodialysis: Scoping Review

Participation in eHealth Communication Interventions Among Patients Undergoing Hemodialysis: Scoping Review

Approximately 3.9 million individuals living with stage-V chronic kidney disease (CKD) worldwide receive kidney replacement therapy, kidney transplantation, or various forms of dialysis, and the numbers continue to rise [10,11]. In-center hemodialysis is more common than peritoneal dialysis (PD), with approximately 2.3 million individuals undergoing hemodialysis in 2019 [12].

Anne Deinboll, Cathrine Fredriksen Moe, Mette Spliid Ludvigsen

J Med Internet Res 2024;26:e51900

Digital Self-Management Platform for Adult Asthma: Randomized Attention-Placebo Controlled Trial

Digital Self-Management Platform for Adult Asthma: Randomized Attention-Placebo Controlled Trial

Asthma is one of the most common chronic conditions worldwide, with an increasing prevalence that currently affects 1 in 10 people at some time [1-3]. The inflammatory disease causes mild-to-severe respiratory symptoms, including shortness of breath, chest tightness, wheezing, and cough.

Aaron Kandola, Kyra Edwards, Joris Straatman, Bettina Dührkoop, Bettina Hein, Joseph Hayes

J Med Internet Res 2024;26:e50855

Mobile Apps for Common Noncommunicable Disease Management: Systematic Search in App Stores and Evaluation Using the Mobile App Rating Scale

Mobile Apps for Common Noncommunicable Disease Management: Systematic Search in App Stores and Evaluation Using the Mobile App Rating Scale

Self-management is crucial in the daily management of chronic diseases to improve quality of life and reduce management costs [11]. However, poor self-management among patients with chronic disease has been observed [12]. Technologies such as m Health have the potential capacity to empower patients requiring support in their self-management efforts.

Khang Jin Cheah, Zahara Abdul Manaf, Arimi Fitri Mat Ludin, Nurul Huda Razalli, Norfilza Mohd Mokhtar, Sawal Hamid Md Ali

JMIR Mhealth Uhealth 2024;12:e49055

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Some people with RDs have primary respiratory manifestations [61], immunocompromised states [62], and chronic comorbidities including intellectual disabilities [63]. People with RDs report a lower quality of life than the general population [64]; they are vulnerable and dependent on the health care system [65]. The Rare Diseases Clinical Research Network (RDCRN) is funded by 10 of the National Institutes of Health (NIH) to promote progress in the diagnosis and treatment of RDs.

Maurizio Macaluso, Marc E Rothenberg, Thomas Ferkol, Pierce Kuhnell, Henry J Kaminski, David W Kimberlin, Michael Benatar, Mirna Chehade, The Principal Investigators of the Rare Diseases Clinical Research Network – Cycle 4

JMIR Public Health Surveill 2024;10:e48430

Content in YouTube Videos for Rosacea: Cross-sectional Study

Content in YouTube Videos for Rosacea: Cross-sectional Study

Rosacea is an inflammatory skin disease that is chronic in nature [1]. The cause of rosacea is unknown and the pathophysiology is inadequately comprehended [1]. Current statistics indicate that this is a prevalent problem, with an estimated 416 million adults affected [2] worldwide and an estimated 16 million individuals with rosacea in the United States [3]. Recent research has led to improved understanding of the common triggers and symptomology of this widely experienced issue.

Corey H Hannah Basch, Priscila E Laforet, Grace C Hillyer, Erica J Seidel, Christie Jaime

JMIR Dermatol 2021;4(1):e24517

Nurses’ Use of mHealth Apps for Chronic Conditions: Cross-Sectional Survey

Nurses’ Use of mHealth Apps for Chronic Conditions: Cross-Sectional Survey

Chronic conditions account for 74% of all deaths globally [1]. Approximately 46% to 53% of adults in high-income countries have at least 1 chronic condition [2,3]. The high prevalence of chronic conditions contributes significantly to premature morbidity and mortality as well as poor quality of life [1,4]. Chronic conditions are also linked to high health care costs and resource consumption [5]. Self-management is a key strategy shown to improve outcomes and quality of life [6].

Wa'ed Shiyab, Kaye Rolls, Caleb Ferguson, Elizabeth Halcomb

JMIR Nursing 2024;7:e57668

User Engagement, Acceptability, and Clinical Markers in a Digital Health Program for Nonalcoholic Fatty Liver Disease: Prospective, Single-Arm Feasibility Study

User Engagement, Acceptability, and Clinical Markers in a Digital Health Program for Nonalcoholic Fatty Liver Disease: Prospective, Single-Arm Feasibility Study

Nonalcoholic fatty liver disease (NAFLD) is the most common chronic liver disease in the world [1]. NAFLD is defined as >5% fat in the liver (steatosis) among people who drink moderate amounts or no alcohol and have no other chronic liver diseases [2]. NAFLD reflects a spectrum of liver pathologies, ranging from simple steatosis to a more severe condition called nonalcoholic steatohepatitis (NASH), which includes inflammation and potential scarring of the liver [3].

Sigridur Björnsdottir, Hildigunnur Ulfsdottir, Elias Freyr Gudmundsson, Kolbrun Sveinsdottir, Ari Pall Isberg, Bartosz Dobies, Gudlaug Erla Akerlie Magnusdottir, Thrudur Gunnarsdottir, Tekla Karlsdottir, Gudlaug Bjornsdottir, Sigurdur Sigurdsson, Saemundur Oddsson, Vilmundur Gudnason

JMIR Cardio 2024;8:e52576

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