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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

First, three independent coders (EEP, PKJH, and MBG) collaborated to develop a preliminary codebook (Pearce, forthcoming) that included a priori code categories for “internet use” and “social media use.” Then, 3 independent coders (EEP, AM, and TB) coded all transcripts, meeting weekly over the course of 9 months to compare coding and arrive at a consensus through discussion. Disagreements about codes were reviewed by a fifth coder (PKJH), discussed, and resolved through group consensus.

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024;8:e64343