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Engaging End Users to Inform the Design and Social Marketing Strategy for a Web-Based Sexually Transmitted Infection/Blood-Borne Virus (STI/BBV) Testing Service for Young People in Victoria, Australia: Qualitative Study

Engaging End Users to Inform the Design and Social Marketing Strategy for a Web-Based Sexually Transmitted Infection/Blood-Borne Virus (STI/BBV) Testing Service for Young People in Victoria, Australia: Qualitative Study

Data collected from the focus group workshops (transcribed notes, audio recording, and physical outputs) were thematically analyzed in Excel by ETC in consultation with SC using an inductive approach [21]. We validated high-level data with those attending the workshop (OW, RP, and TL). Illustrative quotes are presented by geographical location of the workshops. During the workshops the service was referred to as “online” or “web-based” interchangeably for simplicity.

Ethan T Cardwell, Teralynn Ludwick, Shanton Chang, Olivia Walsh, Megan Lim, Rachel Podbury, David Evans, Christopher K Fairley, Fabian Y S Kong, Jane S Hocking

J Med Internet Res 2025;27:e63822

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

For example, Megan Doerr argues that building or establishing a “social license” for collecting and using data can be more appropriate and protective than deidentification [47]. A social license represents the informal permission of a community to engage in a specific activity [48,49]. In public health contexts, a social license can legitimize the collection, use, or sharing of data about relevant communities.

Cason D Schmit, Meghan Curry O’Connell, Sarah Shewbrooks, Charles Abourezk, Fallon J Cochlin, Megan Doerr, Hye-Chung Kum

J Med Internet Res 2025;27:e70983