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Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Consistent with Lee, Heilig, and White, decisions not to share timely data with Tribes should be justified, and justifications should expressly address the anticipated harms of not sharing data [20]. 4. Adopt standard mechanisms for Tribes and TECs to request identifiable public health data with transparent and pre-defined terms for data transmission, use, and governance, consistent with public health ethics. 5.

Cason D Schmit, Meghan Curry O’Connell, Sarah Shewbrooks, Charles Abourezk, Fallon J Cochlin, Megan Doerr, Hye-Chung Kum

J Med Internet Res 2025;27:e70983

Informatics Interventions for Maternal Morbidity: Scoping Review

Informatics Interventions for Maternal Morbidity: Scoping Review

Mental health conditions are the leading cause of pregnancy-related deaths in the United States according to state Maternal Mortality Review Committees [104] and of non-Hispanic White and Hispanic women when stratified by ethnicity. Cardiac conditions are the leading cause of pregnancy-related death for Black/African American women in the United States, but the focus on interventions aimed at patients themselves minimizes the role provider knowledge and practice within a health system plays in the crisis.

Jill Inderstrodt, Julia C Stumpff, Rebecca C Smollen, Shreya Sridhar, Sarah A El-Azab, Opeyemi Ojo, Brendan Bowns, David A Haggstrom

Interact J Med Res 2025;14:e64826

Co-Design of a Depression Self-Management Tool for Adolescent and Young Adult Cancer Survivors: User-Centered Design Approach

Co-Design of a Depression Self-Management Tool for Adolescent and Young Adult Cancer Survivors: User-Centered Design Approach

The majority of providers identified as non-Hispanic White (4/4, 100%) and heterosexual (3/4, 75%). Disciplines represented by providers included medical oncology and social work. AYA cancer survivors ranged in age from 15 to 37 years (mean 23.5, SD 8.85 years). The majority of AYA cancer survivors identified as non-Hispanic White (6/8, 75%), female (6/8, 75%), and heterosexual (7/8, 87.5%). Each AYA cancer survivor had been diagnosed with cancer between the ages of 12 and 36 years.

Karly M Murphy, Rachel Glock, David Victorson, Madhu Reddy, Sarah A Birken, John M Salsman

JMIR Form Res 2025;9:e67175