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Emerging Indications for Hyperbaric Oxygen Treatment: Registry Cohort Study

Emerging Indications for Hyperbaric Oxygen Treatment: Registry Cohort Study

To gather more data on HBO2 applications, outcome data from multiple centers need to be combined, but until 2011, no major academic registry existed to record treated cases and to track outcomes [5,6]. The International Registry for Hyperbaric Oxygen Treatment was formed to gather consistent outcome data from multiple centers [5]. The registry’s goal is to improve the use of HBO2 through evidence-based medicine.

Hideaki L Tanaka, Judy R Rees, Ziyin Zhang, Judy A Ptak, Pamela M Hannigan, Elaine M Silverman, Janet L Peacock, Jay C Buckey, Multicenter Registry for Hyperbaric Oxygen Treatment Consortium

Interact J Med Res 2024;13:e53821

Migrating a Well-Established Longitudinal Cohort Database From Oracle SQL to Research Electronic Data Entry (REDCap): Data Management Research and Design Study

Migrating a Well-Established Longitudinal Cohort Database From Oracle SQL to Research Electronic Data Entry (REDCap): Data Management Research and Design Study

In this project, we report on the migration of data collected in the Swiss Mother and Child HIV Cohort Study (Mo CHi V) from Oracle SQL (Oracle Corp) to REDCap. Mo CHi V is a multicenter longitudinal cohort study with approximately 100,000 data records dating back to the early 1980s [19-21]. Data have been prospectively collected via paper forms all over Switzerland submitted by mail to the data center of the Swiss HIV Cohort Study, where data managers transfer the data manually to the Oracle database.

Katharina Kusejko, Daniel Smith, Alexandra Scherrer, Paolo Paioni, Malte Kohns Vasconcelos, Karoline Aebi-Popp, Roger D Kouyos, Huldrych F Günthard, Christian R Kahlert, Swiss HIV Cohort Study and the Swiss Mother and Child HIV Cohort Study

JMIR Form Res 2023;7:e44567

Electronic Health Diary Campaigns to Complement Longitudinal Assessments in Persons With Multiple Sclerosis: Nested Observational Study

Electronic Health Diary Campaigns to Complement Longitudinal Assessments in Persons With Multiple Sclerosis: Nested Observational Study

In light of these challenges, we aimed to explore the applicability and usability of electronic health diary data collected by the Swiss Multiple Sclerosis Registry (SMSR) during a week-long health diary campaign. Specifically, we aimed to compare the characteristics of the participants in the health diary campaign with eligible nonparticipants of the SMSR campaign (aim 1).

Chloé Sieber, Deborah Chiavi, Christina Haag, Marco Kaufmann, Andrea B Horn, Holger Dressel, Chiara Zecca, Pasquale Calabrese, Caroline Pot, Christian Philipp Kamm, Viktor von Wyl, Swiss Multiple Sclerosis Registry

JMIR Mhealth Uhealth 2022;10(10):e38709

The Indigo System in Acute Lower-Limb Malperfusion (INDIAN) Registry: Protocol

The Indigo System in Acute Lower-Limb Malperfusion (INDIAN) Registry: Protocol

The Indigo System in Acute Lower-Limb Malperfusion (INDIAN) Registry was intended as a national platform where every physician could register his or her own data procedure. A total of 150 patients suffering from acute lower limb malperfusion will be recruited in order to prove safety and efficacy of the Indigo System. All participating centers have extensive experience in this kind of disease.

Gianmarco de Donato, Edoardo Pasqui, Giovanni Giannace, Francesco Setacci, Domenico Benevento, Giancarlo Palasciano, Carlo Setacci, INDIAN Registry Collaborators

JMIR Res Protoc 2019;8(3):e9972