Redesign and Validation of Sisom, an Interactive Assessment and Communication Tool for Children With Cancer

Journals

1. Mitchell K, Holtz B, McCarroll A. Patient-Centered Methods for Designing and Developing Health Information Communication Technologies: A Systematic Review. Telemedicine and e-Health 2019;25(11):1012 View
2. Verdaguer S, Mateo K, Wyka K, Dennis-Tiwary T, Leung M. A Web-Based Interactive Tool to Reduce Childhood Obesity Risk in Urban Minority Youth: Usability Testing Study. JMIR Formative Research 2018;2(2):e21 View
3. Larsson I, Svedberg P, Arvidsson S, Nygren J, Carlsson I. Parents’ experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study. BMC Health Services Research 2019;19(1) View
4. Leung M, Mateo K, Verdaguer S, Wyka K. Testing a Web-Based Interactive Comic Tool to Decrease Obesity Risk Among Minority Preadolescents: Protocol for a Pilot Randomized Control Trial. JMIR Research Protocols 2018;7(11):e10682 View
5. Hyslop S, Sung L, Stein E, Dupuis L, Spiegler B, Vettese E, Tomlinson D. Identifying symptoms using the drawings of 4–7 year olds with cancer. European Journal of Oncology Nursing 2018;36:56 View
6. Ångström-Brännström C, Lindh V, Mullaney T, Nilsson K, Wickart-Johansson G, Svärd A, Nyholm T, Lindh J, Engvall G. Parents’ Experiences and Responses to an Intervention for Psychological Preparation of Children and Families During the Child’s Radiotherapy. Journal of Pediatric Oncology Nursing 2018;35(2):132 View
7. Larsson I, Staland-Nyman C, Svedberg P, Nygren J, Carlsson I. Children and young people’s participation in developing interventions in health and well-being: a scoping review. BMC Health Services Research 2018;18(1) View
8. Carlsson I, Arvidsson S, Svedberg P, Nygren J, Viklund Å, Birkeland A, Larsson I. Creating a communication space in the healthcare context: Children’s perspective of using the eHealth service, Sisom. Journal of Child Health Care 2021;25(1):31 View
9. Vinblad E, Larsson I, Lönn M, Olsson E, Nygren J, Svedberg P. Development of a Digital Decision Support Tool to Aid Participation of Children With Disabilities in Pediatric Rehabilitation Services: Explorative Qualitative Study. JMIR Formative Research 2019;3(4):e14493 View
10. Mehdizadeh H, Asadi F, Mehrvar A, Nazemi E, Emami H. Smartphone apps to help children and adolescents with cancer and their families: a scoping review. Acta Oncologica 2019;58(7):1003 View
11. Siedlikowski M, Rauch F, Tsimicalis A. Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI. Journal of Medical Internet Research 2020;22(9):e17947 View
12. Gilljam B, Nygren J, Svedberg P, Arvidsson S. Impact of an Electronic Health Service on Child Participation in Pediatric Oncology Care: Quasiexperimental Study. Journal of Medical Internet Research 2020;22(7):e17673 View
13. Nygren J, Zukauskaite E, Westberg N. User Participation in Coproduction of Health Innovation: Proposal for a Synergy Project. JMIR Research Protocols 2018;7(5):e126 View
14. Tsimicalis A, Rennick J, Stinson J, May S, Louli J, Choquette A, Treherne S, Berube S, Yoon S, Ruland C. Usability Testing of an Interactive Communication Tool to Help Children Express Their Cancer Symptoms. Journal of Pediatric Oncology Nursing 2018;35(5):320 View
15. Oulton K, Oldrieve N, Bayliss J, Jones V, Manning I, Shipway L, Gibson F. Using participatory and creative research methods to develop and pilot an informative game for preparing children for blood tests. Arts & Health 2017:1 View
16. Svedberg P, Arvidsson S, Larsson I, Carlsson I, Nygren J. Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care. Journal of Medical Internet Research 2019;21(11):e14271 View
17. Kasper J, Lager A, Rumpsfeld M, Kienlin S, Smestad K, Bråthen T, Ankell H, Knutsen T, Kløvtveit R, Gulbrandsen P, Vandvik P, Heen A, Flottorp S, Tollåli G, Eiring Ø. Status report from Norway: Implementation of patient involvement in Norwegian health care. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2017;123-124:75 View
18. Tsimicalis A, Rennick J, Le May S, Stinson J, Sarkis B, Séguin K, Siedlikowski M, Choquette A, Louli J. “Tell it as it is”: How Sisom prompts children and parents to discuss their cancer experience. Cancer Reports 2019;2(3) View
19. Requena M, Orellana L, Cordeiro V, Luna F, Bevilacqua M, Gomez K, Wolfe J, Dussel V. Spanish Adaptation of the Pediatric Memorial Symptom Assessment Scale for Children, Teens, and Caregivers. Journal of Pain and Symptom Management 2021;61(6):1165 View
20. Lloyd N, Kenny A, Hyett N. Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review. BMC Health Services Research 2021;21(1) View
21. Siedlikowski M, Curiale L, Rauch F, Tsimicalis A. Experiences of Children With Osteogenesis Imperfecta in the Co-design of the Interactive Assessment and Communication Tool Sisom OI: Secondary Analysis of Qualitative Design Sessions. JMIR Pediatrics and Parenting 2021;4(3):e22784 View
22. Yamaji N, Suzuki D, Suto M, Sasayama K, Ota E. Communication Tools Used in Cancer Communication with Children: A Scoping Review. Cancers 2022;14(19):4624 View
23. Mehdizadeh H, Asadi F, Emami H, Mehrvar A, Nazemi E. An mHealth Self-management System for Support Children With Acute Lymphocytic Leukemia and Their Caregivers: Qualitative Co-design Study. JMIR Formative Research 2022;6(4):e36721 View
24. Kang L, Lin P, Granlund M, Chen C, Sung W, Chiu Y. Development and usability of an app-based instrument of participation in children with disabilities. Scandinavian Journal of Occupational Therapy 2023;30(3):322 View
25. Semerci R, Akgün Kostak M, Taşkın C. The effect of using an interactive mobile application for the management of chemotherapy-induced nausea and vomiting in children: Randomized controlled study. European Journal of Oncology Nursing 2022;58:102121 View
26. Savage M, Fernandez-Luque L, Graham S, van Dommelen P, Araujo M, de Arriba A, Koledova E. Adherence to r-hGH Therapy in Pediatric Growth Hormone Deficiency: Current Perspectives on How Patient-Generated Data Will Transform r-hGH Treatment Towards Integrated Care. Patient Preference and Adherence 2022;Volume 16:1663 View
27. Baños R, Peltonen L, Martin B, Koledova E. An Augmented Reality Mobile App (Easypod AR) as a Complementary Tool in the Nurse-Led Integrated Support of Patients Receiving Recombinant Human Growth Hormone: Usability and Validation Study. JMIR Nursing 2023;6:e44355 View
28. Chow A, Saad A, Al‐Baldawi Z, Iverson R, Skidmore B, Jordan I, Pallone N, Smith M, Chakraborty P, Brehaut J, Cohen E, Dyack S, Gillis J, Goobie S, Greenberg C, Hayeems R, Hutton B, Inbar‐Feigenberg M, Jain‐Ghai S, Khangura S, MacKenzie J, Mitchell J, Moazin Z, Nicholls S, Pender A, Prasad C, Schulze A, Siriwardena K, Sparkes R, Speechley K, Stockler S, Taljaard M, Teitelbaum M, Trakadis Y, Van Karnebeek C, Walia J, Wilson K, Potter B. Family‐centred care interventions for children with chronic conditions: A scoping review. Health Expectations 2024;27(1) View
29. Hybschmann J, Sørensen J, Thestrup J, Pappot H, Boisen K, Frandsen T, Gjærde L. MyHospitalVoice – a digital tool co-created with children and adolescents that captures patient-reported experience measures: a study protocol. Research Involvement and Engagement 2024;10(1) View