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This paper is in the following e-collection/theme issue:

Design and Formative Evaluation of Mobile Apps (994) mHealth for Symptom and Disease Monitoring, Chronic Disease Management (2314) User-Centered Design Case Studies (839) Wearable Devices and Sensors (1537) Participatory Design and Participatory Research (512)

Published on in Vol 14 (2026)

This is a member publication of Bodleian Libraries (Jisc)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/85425, first published .
Team brainstorming app features on a whiteboard with sticky notes and diagrams.

A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study

A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study

Authors of this article:

Sarah Margaret Goodday1, 2 Author Orcid Image ;   Emma Karlin2 Author Orcid Image ;   Madeleine Sorensen2 Author Orcid Image ;   Robin Yang2 Author Orcid Image ;   Paul Gordon2 Author Orcid Image ;   Caresse Opoku2 Author Orcid Image ;   Daniel Vuong2 Author Orcid Image ;   Jenee Wilson2 Author Orcid Image ;   Diane McKenzie2 Author Orcid Image ;   Jules Piccotti3 Author Orcid Image ;   Massimiliano Tavanti3 Author Orcid Image ;   Megan Fitzgerald4 Author Orcid Image ;   Yochai Re'em4 Author Orcid Image ;   Hannah Wei4 Author Orcid Image ;   Megan Golden5 Author Orcid Image ;   Daniel Morgan5 Author Orcid Image ;   Michele Manion6 Author Orcid Image ;   Ricardo Mosquera7 Author Orcid Image ;   Tricha Shivas8 Author Orcid Image ;   Elise Hoover8 Author Orcid Image ;   Allison Peck9 Author Orcid Image ;   Nathan Peck9 Author Orcid Image ;   Zollie Yavarow9 Author Orcid Image ;   Heidi Bjornson-Pennell10 Author Orcid Image ;   Andra Stratton10 Author Orcid Image ;   Samali Anova Sahoo11 Author Orcid Image ;   Douglas Arbittier11 Author Orcid Image ;   Elizabeth Arbittier11 Author Orcid Image ;   Renee Goff2 Author Orcid Image ;   Donna Harvin-Graham2 Author Orcid Image ;   Nancy Howard8 Author Orcid Image ;   Camille Knudsen9 Author Orcid Image ;   Mary Oldham2 Author Orcid Image ;   Stephen Friend1, 2 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Sarah Margaret Goodday   1, 2 , MSc, PhD ;   Emma Karlin   2 , MPH ;   Madeleine Sorensen   2 , MPH ;   Robin Yang   2 , MSc ;   Paul Gordon   2 , MA ;   Caresse Opoku   2 , MBS ;   Daniel Vuong   2 , BS ;   Jenee Wilson   2 , MBS ;   Diane McKenzie   2 , MHA ;   Jules Piccotti   3 ;   Massimiliano Tavanti   3 , BSc ;   Megan Fitzgerald   4 , PhD ;   Yochai Re'em   4 , MD ;   Hannah Wei   4 , BS ;   Megan Golden   5 , JD ;   Daniel Morgan   5 , BBE, MEng ;   Michele Manion   6 , BS ;   Ricardo Mosquera   7 , MD ;   Tricha Shivas   8 , MBE ;   Elise Hoover   8 , MPH ;   Allison Peck   9 , BS ;   Nathan Peck   9 , MBA, MS ;   Zollie Yavarow   9 , PhD ;   Heidi Bjornson-Pennell   10 , JD ;   Andra Stratton   10 , MS ;   Samali Anova Sahoo   11 , BS ;   Douglas Arbittier   11 , MD, MBA ;   Elizabeth Arbittier   11 , VMD ;   Renee Goff   2 ;   Donna Harvin-Graham   2 , MBA ;   Nancy Howard   8 , MS ;   Camille Knudsen   9 , BA, BS ;   Mary Oldham   2 , BSc ;   Stephen Friend   1, 2 , MD, PhD

1 Department of Psychiatry, University of Oxford, Oxford, United Kingdom

2 4YouandMe, New York, NY, United States

3 AgileOps, Siena, Italy

4 Patient-Led Research Collaborative, Calabasis, DC, United States

5 Mission: Cure, New York, NY, United States

6 Primary Ciliary Dyskinesia (PCD) Foundation, Rochester, NY, United States

7 Department of Pediatrics, The University of Texas Health Science Center at Houston, Houston, TX, United States

8 Foundation for Sarcoidosis Research, Chicago, IL, United States

9 Cure VCP Disease Inc., Warner Robins, GA, United States

10 Biohub, San Francisco, CA, United States

11 University of Pennsylvania, Philadelphia, PA, United States

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