Published on in Vol 8, No 5 (2020): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/14884, first published .
Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach

Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach

Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach

Journals

  1. Hodges J, Phillips S, Norell S, Nwosu C, Khan H, Luo L, Badawy S, King A, Tanabe P, Treadwell M, Rojas Smith L, Calhoun C, Hankins J, Porter J. Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study. Blood Advances 2020;4(18):4463 View
  2. Hankins J, Shah N, DiMartino L, Brambilla D, Fernandez M, Gibson R, Gordeuk V, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter M, Klesges L, Bosworth H. Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study. JMIR Research Protocols 2020;9(7):e16319 View
  3. Ingerski L, Loew M, Porter J, Su Y, Zhang H, Hankins J, Wang W. Use of Wise Device Technology to Measure Adherence to Hydroxyurea Therapy in Youth With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology 2021;43(1):e19 View
  4. Issom D, Hardy-Dessources M, Romana M, Hartvigsen G, Lovis C. Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study. Frontiers in Digital Health 2021;3 View
  5. Muhsen H, Almayyali A, Al-Mamoori A, Mahmood F. Theoretical analysis of the structural and electronic properties of the interaction of boron nitride diamantane nanocrystal with the drug hydroxyurea as an anticancer drug. Journal of Molecular Modeling 2021;27(3) View
  6. Badawy S, Cronin R, Liem R, Palermo T. Digital behavioural interventions for people with sickle cell disease. Cochrane Database of Systematic Reviews 2021 View
  7. Mehta P, Moore S, Bull S, Kwan B. Building MedVenture – A mobile health application to improve adolescent medication adherence – Using a multidisciplinary approach and academic–industry collaboration. DIGITAL HEALTH 2021;7:205520762110198 View
  8. Shah A, O’Dwyer L, Badawy S. Telemedicine in Malignant and Nonmalignant Hematology: Systematic Review of Pediatric and Adult Studies. JMIR mHealth and uHealth 2021;9(7):e29619 View
  9. Bhatt N, Calhoun C, Longoria J, Nwosu C, Howell K, Varughese T, Kang G, Jacola L, Hankins J, King A. Health literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease. Pediatric Blood & Cancer 2023;70(5) View
  10. Nassetta K, Hussain T, Gambetta K, Le K, O’Dwyer L, Badawy S. A Systematic Review of Adherence to Immunosuppression among Pediatric Heart Transplant Patients. Journal of Cardiovascular Development and Disease 2022;9(5):165 View
  11. Dominguez-Rodriguez A, De La Rosa-Gómez A. A Perspective on How User-Centered Design Could Improve the Impact of Self-Applied Psychological Interventions in Low- or Middle-Income Countries in Latin America. Frontiers in Digital Health 2022;4 View
  12. Hankins J, Potter M, Fernandez M, Melvin C, DiMartino L, Jacobs S, Bosworth H, King A, Simon J, Glassberg J, Kutlar A, Gordeuk V, Shah N, Baumann A, Klesges L. Evaluating the implementation of a multi-level mHealth study to improve hydroxyurea utilization in sickle cell disease. Frontiers in Health Services 2023;2 View
  13. Stasher-Booker B, Stapleton D, M. Raines G. The Use of Smartphone Technology to Improve the Health of Sickle Cell Patients. Journal of Public Health Issues and Practices 2021;5(2) View
  14. Shaner S, Hilliard L, Howard T, Pernell B, Bhatia S, Lebensburger J. Impact of telehealth visits on hydroxyurea response in sickle cell anemia. Pediatric Blood & Cancer 2021;68(12) View
  15. Maheu C, Kocum L, Parkinson M, Robinson L, Bernstein L, Zanchetta M, Singh M, Hernandez C, Yashmin F, Esplen M. Evaluation of Usability and Satisfaction of Two Online Tools to Guide Return to Work for Cancer Survivors on the Cancer and Work Website. Journal of Occupational Rehabilitation 2022;32(3):452 View
  16. Locke M, Reddy P, Badawy S. Adherence to Iron Chelation Therapy among Adults with Thalassemia: A Systematic Review. Hemoglobin 2022;46(4):201 View
  17. Ristow N, Wilke A, Malte John S, Ludewig M. Development of an app-based maintenance programme to promote skin protection behaviour for patients with work-related skin diseases. Health Education Journal 2022;81(6):731 View
  18. Schneider M, Manikowski A, Cohen L, Dampier C, Sil S. The distinct longitudinal impact of pain catastrophizing on pain interference among youth living with sickle cell disease and chronic pain. Journal of Behavioral Medicine 2022;45(4):622 View
  19. Badawy S, DiMartino L, Brambilla D, Klesges L, Baumann A, Burns E, DeMartino T, Jacobs S, Khan H, Nwosu C, Shah N, Hankins J. Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study. JMIR Formative Research 2022;6(10):e41415 View
  20. Feroz A, De Vera K, D Bragagnolo N, Saleem S, Bhutta Z, Seto E. Understanding the Needs of a Mobile Phone–Based Telemonitoring Program for Pregnant Women at High Risk for Pre-Eclampsia: Interpretive Qualitative Description Study. JMIR Formative Research 2022;6(2):e32428 View
  21. Creary S, Beeman C, Stanek J, King K, McGann P, O'Brien S, Liem R, Holl J, Badawy S. Impact of hydroxyurea dose and adherence on hematologic outcomes for children with sickle cell anemia. Pediatric Blood & Cancer 2022;69(6) View
  22. Rai P, Okhomina V, Kang G, Martinez H, Hankins J, Joshi V. Longitudinal effect of disease‐modifying therapy on left ventricular diastolic function in children with sickle cell anemia. American Journal of Hematology 2023;98(6):838 View
  23. Smeltzer M, Howell K, Treadwell M, Preiss L, King A, Glassberg J, Tanabe P, Badawy S, DiMartino L, Gibson R, Kanter J, Klesges L, Hankins J. Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA. BMJ Open 2021;11(11):e050880 View
  24. Listernick Z, Badawy S. Mental Health Implications of the COVID-19 Pandemic Among Children and Adolescents: What Do We Know so Far?. Pediatric Health, Medicine and Therapeutics 2021;Volume 12:543 View
  25. Longoria J, Pugh N, Gordeuk V, Hsu L, Treadwell M, King A, Gibson R, Kayle M, Crego N, Glassberg J, Melvin C, Hankins J, Porter J. Patient‐reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease. American Journal of Hematology 2021;96(11):1396 View
  26. Arigo D, Lobo A, Ainsworth M, Baga K, Pasko K. Development and Initial Testing of a Personalized, Adaptive, and Socially Focused Web Tool to Support Physical Activity Among Women in Midlife: Multidisciplinary and User-Centered Design Approach. JMIR Formative Research 2022;6(7):e36280 View
  27. Falahati-Marvast F, Pucker A, Alipour F, Farokhzadian J, Ahmadian L. Identifying the content, functionalities, and features of a mobile application for contact lens wearers. BMC Medical Informatics and Decision Making 2022;22(1) View
  28. Lee Y, Jang Y, Lee S. Obstacles to Health Big Data Utilization Based on the Perceptions and Demands of Health Care Workers in South Korea: Web-Based Survey Study. JMIR Formative Research 2023;7:e45913 View
  29. Gber T, Etinwa B, Benjamin I, Ekereke E, Offiong O, Adeyinka A, Louis H. Functionalized boron doped graphene (BGP) as smart nanocarrier for delivery of hydroxyurea (HU) drug. Chemical Physics Impact 2023;7:100291 View
  30. King K, Cai S, Barrera L, Reddy P, Heneghan M, Badawy S. Barriers to medication adherence in sickle cell disease: A comprehensive theory‐based evaluation using the COM‐B model. Pediatric Blood & Cancer 2023;70(9) View
  31. Hankins J, Brambilla D, Potter M, Kutlar A, Gibson R, King A, Baumann A, Melvin C, Gordeuk V, Hsu L, Nwosu C, Porter J, Alberts N, Badawy S, Simon J, Glassberg J, Lottenberg R, DiMartino L, Jacobs S, Fernandez M, Bosworth H, Klesges L, Shah N. A multilevel mHealth intervention boosts adherence to hydroxyurea in individuals with sickle cell disease. Blood Advances 2023;7(23):7190 View
  32. Nwosu C, Khan H, Masese R, Nocek J, Gollan S, Varughese T, Bourne S, Clesca C, Jacobs S, Baumann A, Klesges L, Shah N, Hankins J, Smeltzer M. Recruitment Strategies in the Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization Study (meSH): Multicenter Survey Study. JMIR Formative Research 2024;8:e48767 View
  33. Conceição M, Borges C, Do Vale P, Gomes A, Carvalho E. APLICATIVOS MÓVEIS PARA AUTOGESTÃO DA DOR NA DOENÇA FALCIFORME: UMA REVISÃO INTEGRATIVA. Revista de Enfermagem UFPE on line 2023;17(1) View
  34. Knight L, Tanabe P, Blewer A, Goodrich J, King A, Reuter‐Rice K, Crego N. Association of hydroxyurea adherence with transcranial Doppler screenings in children with sickle cell disease. Pediatric Blood & Cancer 2024;71(7) View
  35. Murphy B, Keenan‐Pfeiffer M, Lane A, Crosby L, Walsh K. Feasibility of a clinic‐based, multicomponent hydroxyurea adherence intervention for adolescents and young adults with sickle cell disease. Pediatric Blood & Cancer 2024 View
  36. Walden J, Brown L, Seiguer S, Munshaw K, Rausch J, Badawy S, McGann P, Winkler S, Gonzalez L, Creary S, Tucker J. Study protocol for ADHERE (Applying Directly observed therapy to HydroxyurEa to Realize Effectiveness): Using small business partnerships to deliver a scalable and novel hydroxyurea adherence solution to youth with sickle cell disease. PLOS ONE 2024;19(6):e0304644 View

Books/Policy Documents

  1. Issom D. Sickle Cell Disease. View