Published on in Vol 7, No 12 (2019): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/13433, first published .
Objectively Monitoring Amyotrophic Lateral Sclerosis Patient Symptoms During Clinical Trials With Sensors: Observational Study

Objectively Monitoring Amyotrophic Lateral Sclerosis Patient Symptoms During Clinical Trials With Sensors: Observational Study

Objectively Monitoring Amyotrophic Lateral Sclerosis Patient Symptoms During Clinical Trials With Sensors: Observational Study

Journals

  1. Andrews J, Berry J, Baloh R, Carberry N, Cudkowicz M, Dedi B, Glass J, Maragakis N, Miller T, Paganoni S, Rothstein J, Shefner J, Simmons Z, Weiss M, Bedlack R. Amyotrophic lateral sclerosis care and research in the United States during the COVID‐19 pandemic: Challenges and opportunities. Muscle & Nerve 2020;62(2):182 View
  2. Pinto S, Quintarelli S, Silani V. New technologies and Amyotrophic Lateral Sclerosis – Which step forward rushed by the COVID-19 pandemic?. Journal of the Neurological Sciences 2020;418:117081 View
  3. Kelly M, Lavrov A, Garcia-Gancedo L, Parr J, Hart R, Chiwera T, Shaw C, Al-Chalabi A, Marsden R, Turner M, Talbot K. The use of biotelemetry to explore disease progression markers in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 2020;21(7-8):563 View
  4. Bombaci A, Abbadessa G, Trojsi F, Leocani L, Bonavita S, Lavorgna L, Tedeschi G, Mancardi G, Padovani A, Clerico M, Brigo F, Lanzillo R, Russo A, Giometto B, Straccia G, Iodice R, Bucello S, Annovazzi P, Moccia M, Prosperini L, Stromillo M, Repice A, Miele G, Lerario A, De Martino A, Iodice F, Di Lorenzo F, Cuffaro L, Romoli M, Silvestro M, Artusi C. Telemedicine for management of patients with amyotrophic lateral sclerosis through COVID-19 tail. Neurological Sciences 2021;42(1):9 View
  5. Tena A, Claria F, Solsona F, Meister E, Povedano M. Detection of Bulbar Involvement in Patients With Amyotrophic Lateral Sclerosis by Machine Learning Voice Analysis: Diagnostic Decision Support Development Study. JMIR Medical Informatics 2021;9(3):e21331 View
  6. van Eijk R, Beelen A, Kruitwagen E, Murray D, Radakovic R, Hobson E, Knox L, Helleman J, Burke T, Rubio Pérez M, Reviers E, Genge A, Steyn F, Ngo S, Eaglesham J, Roes K, van den Berg L, Hardiman O, McDermott C. A Road Map for Remote Digital Health Technology for Motor Neuron Disease. Journal of Medical Internet Research 2021;23(9):e28766 View
  7. Youn B, Ko Y, Moon S, Lee J, Ko S, Kim J. Digital Biomarkers for Neuromuscular Disorders: A Systematic Scoping Review. Diagnostics 2021;11(7):1275 View
  8. Holdom C, van Unnik J, van Eijk R, van den Berg L, Henderson R, Ngo S, Steyn F. Use of hip- versus wrist-based actigraphy for assessing functional decline and disease progression in patients with motor neuron disease. Journal of Neurology 2023;270(5):2597 View
  9. Palumbo A, Ielpo N, Calabrese B, Corchiola D, Garropoli R, Gramigna V, Perri G. SIMpLE: A Mobile Cloud-Based System for Health Monitoring of People with ALS. Sensors 2021;21(21):7239 View
  10. Sakamaki T, Furusawa Y, Hayashi A, Otsuka M, Fernandez J. Remote Patient Monitoring for Neuropsychiatric Disorders: A Scoping Review of Current Trends and Future Perspectives from Recent Publications and Upcoming Clinical Trials. Telemedicine and e-Health 2022;28(9):1235 View
  11. Pugliese R, Sala R, Regondi S, Beltrami B, Lunetta C. Emerging technologies for management of patients with amyotrophic lateral sclerosis: from telehealth to assistive robotics and neural interfaces. Journal of Neurology 2022;269(6):2910 View
  12. Das R, Paul S, Mourya G, Kumar N, Hussain M. Recent Trends and Practices Toward Assessment and Rehabilitation of Neurodegenerative Disorders: Insights From Human Gait. Frontiers in Neuroscience 2022;16 View
  13. Hecker P, Steckhan N, Eyben F, Schuller B, Arnrich B. Voice Analysis for Neurological Disorder Recognition–A Systematic Review and Perspective on Emerging Trends. Frontiers in Digital Health 2022;4 View
  14. Fournier C. Considerations for Amyotrophic Lateral Sclerosis (ALS) Clinical Trial Design. Neurotherapeutics 2022;19(4):1180 View
  15. Meyer T, Spittel S, Grehl T, Weyen U, Steinbach R, Kettemann D, Petri S, Weydt P, Günther R, Baum P, Schlapakow E, Koch J, Boentert M, Wolf J, Grosskreutz J, Rödiger A, Ilse B, Metelmann M, Norden J, Koc R, Körtvélyessy P, Riitano A, Walter B, Hildebrandt B, Schaudinn F, Münch C, Maier A. Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 2023;24(3-4):175 View
  16. Beswick E, Fawcett T, Hassan Z, Forbes D, Dakin R, Newton J, Abrahams S, Carson A, Chandran S, Perry D, Pal S. A systematic review of digital technology to evaluate motor function and disease progression in motor neuron disease. Journal of Neurology 2022;269(12):6254 View
  17. Ding Y, Botchway B, Zhang Y, Jin T, Liu X. The combination of autologous mesenchymal stem cell-derived exosomes and neurotrophic factors as an intervention for amyotrophic lateral sclerosis. Annals of Anatomy - Anatomischer Anzeiger 2022;242:151921 View
  18. Jeong H, Jeong Y, Park Y, Kim K, Park J, Kang D. Applications of deep learning methods in digital biomarker research using noninvasive sensing data. DIGITAL HEALTH 2022;8:205520762211366 View
  19. Khamaysa M, Pradat P. Status of ALS Treatment, Insights into Therapeutic Challenges and Dilemmas. Journal of Personalized Medicine 2022;12(10):1601 View
  20. Knox L, McDermott C, Hobson E. Telehealth in long-term neurological conditions: the potential, the challenges and the key recommendations. Journal of Medical Engineering & Technology 2022;46(6):506 View
  21. Johnson S, Karas M, Burke K, Straczkiewicz M, Scheier Z, Clark A, Iwasaki S, Lahav A, Iyer A, Onnela J, Berry J. Wearable device and smartphone data quantify ALS progression and may provide novel outcome measures. npj Digital Medicine 2023;6(1) View
  22. Hamy V, Llop C, Yee C, Garcia-Gancedo L, Maxwell A, Chen W, Tomlinson R, Bobbili P, Bendelac J, Landry J, DerSarkissian M, Yenikomshian M, Mody E, Duh M, Williams R. Patient-centric assessment of rheumatoid arthritis using a smartwatch and bespoke mobile app in a clinical setting. Scientific Reports 2023;13(1) View
  23. Jenciūtė G, Kasputytė G, Bunevičienė I, Korobeinikova E, Vaitiekus D, Inčiūra A, Jaruševičius L, Bunevičius R, Krikštolaitis R, Krilavičius T, Juozaitytė E, Bunevičius A. Digital Phenotyping for Monitoring and Disease Trajectory Prediction of Patients With Cancer: Protocol for a Prospective Observational Cohort Study. JMIR Research Protocols 2023;12:e49096 View
  24. Kudritzki V, Howard I. Telehealth-based exercise in amyotrophic lateral sclerosis. Frontiers in Neurology 2023;14 View
  25. Lisi E, Abellan J. Statistical analysis of actigraphy data with generalised additive models. Pharmaceutical Statistics 2023 View
  26. Bowden M, Beswick E, Tam J, Perry D, Smith A, Newton J, Chandran S, Watts O, Pal S. A systematic review and narrative analysis of digital speech biomarkers in Motor Neuron Disease. npj Digital Medicine 2023;6(1) View
  27. Straczkiewicz M, Karas M, Johnson S, Burke K, Scheier Z, Royse T, Calcagno N, Clark A, Iyer A, Berry J, Onnela J. Upper limb movements as digital biomarkers in people with ALS. eBioMedicine 2024;101:105036 View